What we do
Our mission
Our mission is to raise awareness about osteopetrosis so that we can help researchers find methods to treating and possibly curing the disease. The way we aim to achieve this is such:
Learn
We strive to broaden understanding and knowledge about osteopetrosis, empowering individuals with accurate information and insights into this rare medical condition.Teach
Through educational initiatives and resources, we encourage and enable individuals to become advocates and educators about osteopetrosis within their communities and beyond.Raise Awareness
By promoting widespread awareness about osteopetrosis, we aim to not only increase support for ongoing research but also catalyze fundraising efforts towards advancing treatment options and improving the lives of those affected by this condition. Together, we envision a future where osteopetrosis is better understood, effectively treated, and one day, cured.
Some of our past projects
In addition to our fundraising efforts, we recently had the opportunity to educate university students about the complexities of osteopetrosis through a compelling presentation. By sharing information and personal stories, we aim to increase awareness and foster a greater understanding of this lesser-known condition among future healthcare professionals and researchers.