What is Osteopetrosis?

Osteopetrosis is a rare genetic condition that affects the way a persons bones develop and change.

Our Mission

Our mission is to increase recognition of Osteopetrosis through education whilst incentivising research through fundraising.

1. Learn

2. Teach

Share our knowledge

3. Raise Awareness

Support families and research

Latest news

Awareness walk in Birmingham 2025

Osteopetrosis Awareness attendees' on the awareness walk in 2024

Join us for Our next annual awareness walk on Saturday 19th April 2025. Read more details by clicking the button below.

Past Events

Awareness Walk in Birmingham

Saturday 20th April 2024

Colouring challenge

Competition ends 30th April 2024

Change your display picture

Friday 19th April 2024