What is Osteopetrosis?
Osteopetrosis is a rare genetic condition that affects the way a persons bones develop and change.
Our Mission
Our mission is to increase recognition of Osteopetrosis through education whilst incentivising research through fundraising.
1. Learn
Learn about osteopetrosis
2. Teach
Share our knowledge
3. Raise Awareness
Support families and research
Latest news
Awareness walk in Birmingham 2025
Join us for Our next annual awareness walk on Saturday 19th April 2025. Read more details by clicking the button below.
Past Events
Awareness Walk in Birmingham
Saturday 20th April 2024
Colouring challenge
Competition ends 30th April 2024
Change your display picture
Friday 19th April 2024